I haven’t written on this blog in over 2 years. In fact, I started this particular post in November 2020, then touched it about a dozen more times, then finally set it aside and didn’t finish it. I’m finishing it now.
I had promised to keep people updated on my weight-loss journey, especially after my bariatric surgery, but I didn’t. I went from wanting to share a personal experience with everyone to keeping it all inside and not sharing anything. So if you’re reading this you stumbled upon it either by accident or you’re someone who periodically checks to see if there’s been an update. Be forewarned, if you continue to read this, well…welcome to my personal Hell. It won’t be nice. I won’t be gentle. If you continue to read this, you do so at your own peril. And this is going to be lengthy.
What I will ask is that if you continue reading this you do nothing. Nothing. Please don’t message me with support, words of wisdom, or anything “helpful.” I don’t want to hear it. At all. It will really just piss me off. And no matter how much I know that those that want to write to help mean well, I can’t be “loved” out of this, and I’m nowhere near wanting to hear that people “care” about it. Or me.
At all.
Fact is, I truly believe that very few people actually give two shits about me. My mom, sure. A few friends and family. That’s it. I lived in the U.S. for nearly 20 years and during that time not one single person from back home visited me, except my mom who did so only 2 or 3 times. Everyone said, “We can wait till you’re home.” So when I finally returned home for good, you know what happened? Not much.
Today marks FIVE years since I’ve moved back home, there are still people who I haven’t seen – family and friends who live in the same city as me – but yet I haven’t seen them. And most I haven’t heard from except on Facebook. Now sure, you can say, “Well Dani, that works both ways.” and you’d be correct. Except you know what I’ve found? For nearly every instance where I have met up with anyone was all because I initiated it. I suggested dinner, a bingo, a movie, or whatnot. Me. And before I moved to the U.S., I remember it the same way. I was the one who nearly always instigated any get-togethers. That tells me…a lot.
It also tells me a lot about, well…me. While I’ll get more into it later (most likely), I’m not an attractive person. I’m not pretty, not even in a “she’s got a chubby little face that just makes her shine” way. Just an obese woman with two chins, and no real beauty to her at all. So, that tells me that it needs to be my sparkling personality that attracts men, but given that I’ve been on zero dates or even been approached in the 15+ years since my divorce, I’ve come to realize that my personality is just as ugly.
I haven’t even told that many “friends” about my situation (explained further below) because I feel like they don’t care. They certainly haven’t tried to reach out to me to ask. But even then, it’s so bad for me right now that I don’t want to see anyone.
But you know what they say, “It’s still nice to be asked…”
But I digress…
I once joked to a friend that while everyone was so eager for me to return home, I would do so, and what would happen would be that I was basically ignored. And that’s what happened. Ironically, in many ways, particularly with how I’ve been feeling the past 24+ months, I’m somewhat okay with that.
COVID didn’t help, sure. We weren’t allowed to socialize. But not one single person bothered to ever contact me to see if I was okay. On my most recent birthday, one friend reach out to actually ask me how I’im doing – that person being aware of my physical issues right now. My closest friends – still most have not contacted me to see if I’m okay.
Lately, things that have crept about in my head include that fact that it’s probably best if I just died before my mother. Sure, it will be hard for her – at first – but there’s no reason for me to outlive my mother. Not if it mean spending the rest of my life (however short or long that might be) by myself. Ccompletely by myself. I quite honestly feel that if my mother wasn’t here and I died in my condo for whatever reason, the only way anyone would know something happened to me is because someone at work would wonder where I was so I could do something for them. If it wasn’t for my job, I shudder to think how much time would pass before ANYONE noticed I wasn’t around. And that’s both pathetic and sad.
And you know what? I’m not okay. Not at all.
In any case, I’m pretty much going to run the gauntlet in this post. From where my so-called “weight-loss journey” is at the moment, to feeling completely unloveable, to my feelings of complete and utter uselessness, to wondering why I’m still here.
But let me be clear, this is not a “COVID-19” thing. If anything, the pandemic has given me an excuse to really hide inside myself and not have to pretend so much that I give two shits about my life. There really should be at least one Academy Award with my name on it for all of the acting I’ve done over the past couple of year. I’ve even been posting the odd “funny” on Facebook just to mask what’s really going on.
2019 was a shit year.
It was supposed to be “my” year. It was supposed to be the start of many great years for me. It turned into a shit-show and was one of the worst years of my life. 2020 and 2021 didn’t fair any better. Of course, if I did nothing to fix anything in 2019, logic dictates that the calendar changing over to 2020 would not miraculously fix everything. Same with 2021. And now 2022.
Now, this is where I quote Einstein:
I had my bariatric/weight-loss surgery in January 2019. I had high expectations, was excited about the prospects of losing a lot of this weight, and finally starting to feel better – about my health and my life. I was 52 years old and felt it was time to finally get my life in order.
I’d written on this very blog about my excitement. And fears. I also wrote that the one thing that I did not want was to be a failure. I’d already been there; done that. I didn’t want to do it again. I didn’t want to be counted in the statistical column under “Failure” for this weight-loss surgery. So many people had had it and after losing the weight, put it back on. Less than a handful of those I know had succeeded. I knew more people who experienced the former. And most of them, I might add, were the heaviest. Those who were considered obese but still not nearly as heavy as myself or others failed – in part, I suspect, due to how much longer it would take us to lose 2x, 3x, or 10x more weight than others. But I am aware that’s not the only reason.
I’d also written on this blog about how many times in the many years I’ve been struggling with my weight did I have experiences that should have pushed me to work harder at my weight loss, but yet they only inspired me briefly. Very briefly. I had questioned why I kept allowing myself to fail. Why I kept putting myself through all the heartache – each and every time. And who in their right mind would want to be as heavy as me? And suffer through so many things as I do daily, and not – NOT – do something about it?
I never got an answer to my question. And I feel now that the key is “who in their RIGHT mind…?” I haven’t been in the right mind in some time. Well before my surgery, but even after it. I thought I was. I was confident that the surgery would help me and I would become better.
I was wrong.
Now, just like everyone else who has struggled with weight loss can give you a hundred reasons why they failed, I’m about to do the same. And it’s not any one singular reason which lead to my failure (and yes, I’m going to use that word a lot and while it’s a very negative word, it is the reality that I am facing at the moment, so there it is.), it’s the culmination of them – building like a tiny snowball as it’s rolled through the snow and exponentially grows bigger and bigger.
After so many years of not being able to control myself – skipping meals, over-eating, too much snacking – I thought this surgery would help me do that. I knew that it would still be hard work and it would be ME who would being doing that hard work, but I had grand hopes that the seriousness of the weight loss surgery, specifically Roux-en-Y Gastric Bypass, would really help me to stay on task because it would make me sick to my stomach if I ate too much or ate something I shouldn’t have. And my intense fear of being sick would kick in.
My mental downfall started when I woke up from my bariatric surgery to find out that I didn’t get the Roux-en-Y Gastric Bypass, but instead I got the Gastric Sleeve. That’s where they remove a large part of your stomach. The idea being that if your stomach is smaller, you’ll feel fuller faster and eat less. But as I said, I wanted the other surgery for the “warnings” that would come with it. The disadvantages of the gastric sleeve:
Disadvantages
- Not reversible, because part of the stomach is removed.
- Weight loss may be more difficult or lessened without the intestinal bypass.
- The body still tolerates carb-rich and high-fat foods, which can slow weight loss.
- No dumping syndrome (discomfort from eating foods rich in carbs)
Now some people have had great success with the sleeve (but most, as I mentioned above, were those people that “only” had to lose 30-80 pounds). But that wasn’t what I wanted because I feared it wasn’t “enough” and it wasn’t. I started my weightloss journey already “behind the eight ball” so to speak. But I tried to stay positive and struck to the “rules”.
The other disadvantage of the gastric sleeve? SLOW weight loss.
Excruciatingly slow weight loss.
So while my cousin and others who had the other surgery were, after only 3 months, dropping 50-60 pounds, I lost 10-15 in that time. I did everything I was supposed to. And actually being that much more heavier, the weight should have dropped off on me faster, just by virtue of eating so much less, as well as eating better. But…by May of 2019 I was in a funk; depressed because the weight loss wasn’t happening fast enough. And my thoughts became toxic. And that was my fault.
This “game” is more mental than physical and I wasn’t feeling it but I did try to not give up. Then tragedy struck.
My mom’s only living/remaining brother – my Uncle Joe – passed away suddenly (we knew he was sick but wasn’t expecting it to happen so quickly) and unfortunately, when we went to his home to await the police and coroner, I mistakingly saw his body and he’d been dead a few days. That is not something you can easily forget. His death started a very stressful time for my mother and me. I won’t get into the details but all thoughts of losing weight went out the door. I started eating out of cycle, eating things I shouldn’t and without that extra “protection” from the other surgery, my new stomach just said, “Feed me!”
Shortly after, my half-sister Donna suddenly passed away. We weren’t particularly close though I had wished we were. And while we weren’t particularly close, I felt her loss deeply. She was my blood. And the side of my life that I still know so little about. So I regret that we weren’t close; that we never really bonded. And then it was too late.
Work was exceptionally stressful over those many months as well, so by the time September/October rolled around, I needed a break. I convince my mom to go on a short vacation with me. We decided to visit New Orleans again for a couple of days before taking a short cruise to Mexico, where I’d never been. It was hot. Too hot. And I hate the heat. Worse yet, however, on the last day of the cruise as the ship was only a few hours from the New Orleans port and where we’d fly back home, my mom woke me up to tell me she was having trouble breathing.
I called the ship emergency center. The idiot doctor there basically told me that she wasn’t going to make it. They arranged to have a NOLA ambulance pick us up when we docked but not before dinging us with a $4K US invoice they charged to our credit card that was left with them for “essentials”. The emergency room doctor at Tulane Medical said she had pneumonia not what the ship doctor said (pulmonary embolism). My mom was so stressed over the next several days being intubated due to the pneumonia, being scared and just wanting to do how that she stressed her heart and she had a heart attack (she already has a weak heart and has a pace-maker).
Two weeks later, where after the first week they told me to notify family because she wasn’t going to make it – her heart wasn’t able to beat on its own – she made a remarkable recovery and was able to finally travel back home.
But the damage – to me – was done. I was broke.
2019 started my downward spiral and it seems no one cares – not even me.
It’s been my mom and me since 1977 when my dad passed away. The stress of staying in a hotel for 2+ weeks while not knowing if she was going to make it or not, and having the hospital hound me about expenses (they charged me $5K within the first hour of her being in the emergency room), something in me just broke. Even having one of my best friends (like sisters) come down to stay with me didn’t prevent me from stressed out so bad that I was physically sick by the time we got home nearly a month later.
And I know that I treated the friend not very well while we were there. I was so stressed, scared…just out of my element – I’m sure that I was rude and surely to her and I should have apologized to her right away. But I didn’t. And she’s now one of the people that I never hear from anymore. And I don’t know if it’s because of that, COVID, or a mix of that and others things. But it makes me sad.
I don’t think I’ve recovered from that time. The constant calls from the hospital to collect on invoices exceeding $1 MILLION US dollars (get your shit together, United States, about your healthcare system!), to worrying about my mom and her health…
I just broke.
Five months later would see COVID hit. For the first while, I was okay with it but like everyone else, as it kept going and going (and is still sort of going), it started to take a toll on me. It was struggle after struggle and mentally I was getting bleaker and bleaker.
And then the other shoe fell…
For all the excess weight that I’ve had to deal with over the years, nothing prepared me for my current struggle. During the COVID months, my weight went up and down with the seasons. Summers – without fail (and with doing nothing wrong) – I can gain 20-50 pounds every Summer of just water weight. No matter what I do – this is something I deal with every Summer and have for the past 25+ years. Then it takes me all winter to lose it. It’s a fucking vicious cycle.
But I also started to notice something weird about my body. I was getting bigger, and bigger, in my apron (the flap of abdomen fat that hangs over called a pannus stomach), especially on my right side. It seemed to keep growing and I really noticed when it started to get in the way of things: going to the bathroom, driving with the steering wheel, but even walking. Eventually, that mass (I called it the bowling ball or “BB”) hardened.
Each step I took I had to push that mass forward with my legs (mostly my right leg). My lower back ached all the time. My shoulders were pulled forward as well. My knees, which were already weak, struggled to allow me to even get up off a chair sometimes.
The BB not only got bigger, but it hardened and the skin began to change – feeling like a cobblestone-type surface.
Some Googling got me to: Abdominal Lymphedema – Stage 4 – Elephantiasis.
Massive localized lymphedema that occurs when the lymphatic fluid doesn’t drain properly, eventually turns to jelly, and then hardens.
I don’t like my doctor. She’s not very caring about her patients (I moved my mom from her after she misdiagnosed something that nearly killed my mom, who had to have emergency surgery to survive). She always tells me “Lose weight”. So I didn’t have high hopes that SHE would do anything about this. I even doubted she would know what it was.
So I went back to the bariatric doctor I saw before my surgery. He’s an ass too. But he’s a smart ass – and I don’t mean that the way it sounds. Just that he’s not stupid.
I won’t get into how he treated me while there but at least I got my answers.
Bottom line: It needs to be removed by surgery.
Let’s be clear: This is NOT fat that I gained. People can certainly look at me and see that I’m obese and assume that this mass, which hangs down to my knees, is fat, but they would be wrong. Lymphatic fluid is not fat tissue. In fact, lymphedema is pretty common and even skinny people can get it – normally in their legs.
But let’s also be clear: I am the reason this happened because my obesity didn’t help. Due to my apron, the weight of the fat that is there, pulled everything down enough that it caused the lymphatic fluid to not drain properly and therefore, welcome BB.
But the issue that I’ve been facing is: when am I going to have it surgically removed.
Not all doctors can do this. No one in my city can. And even with COVID slowing down somewhat so doctor visits are back on schedule and surgeries are now being performed, all the surgeries that were canceled due to COVID are only now just being rescheduled and done. So I’ve been on a waiting list to just get a consultation for some time now. So I don’t even have a surgery date, or even know for sure it will be done by this doctor 2+ hours away from me.
But at this rate, it’s looking to be 2023 before I can have the surgery.
In the meantime, the bariatric doctor estimated that the BB is about 40 or 50 pounds. So on top of the usual weight, and the annual Summer weight, I’m carrying around that much more weight and am not at the highest weight I’ve even been at that has been recorded.
My doctor: Lose weight.
So every day it is a struggle to even move. Walking is rough – between the regular extra weight, the BB and having to push it when I take each step, to how my back feels…on top of my plantar fasciitis and nerve damage in my feet – I’m barely hanging on. It interferes with everything now. Even driving is uncomfortable because I have to lift my right leg to apply the break but that means it trying to lift all the weight of the BB up to do so. Stopping for streetlights is painful and thankfully my city is very flat so I’m able to put the car in Neutral so I can take the pressure off my leg while stopped.
I’ve pulled my lower back so bad that for two weeks I could barely move – even turning my head would have it re-pull and it was one of the most painful things I’ve ever had to deal with. Getting in and out of bed, up or down from or to a chair, in and out of the car, and even just going to the toilet. It would just keep pulling and I live in fear that that will happen again.
I bought a new mattress because mine was over 30 years old. I literally have to climb into it on my hands and knees (with the BB dragging on the mattress), to the center of the bed and then flop down on my left side (no longer can sleep on my right side) and basically where I land, that’s it. I’m stuck. The BB slinks somewhat into the mattress and I’m unable to move.
The BB also stretches out all of my pants to the right side – wearing the fabric out and pulling the seam of my pants to the right. Underwear is impossible to wear for that reason. So I have to switch out my black pants daily. It also, because it rests skin to skin on my thighs causes much chaffing, on top of sweating and sometimes feels as if it’s ripping my skin off. I powder myself like there’s not tomorrow and still…it’s uncomfortable as all fuck.
And in the Summer months, it’s far worse.
There have been days when I have sat here, or laid in bed, and wanted to die. I cry. A lot. All the damn time. Not just from pain, though I have that – throughout my body – but just because I feel completely and utterly broken. I sit and wonder how I left myself get to this point in my life. I feel that I’m not contributing anything to my life and certainly not to anyone else.
I told someone (I thought was a friend but was mistaken) some time ago that one night I sat in the living room looking at the balcony railing out the patio window and momentarily thought “I could just throw myself over it” until I realized that I’m too fucking fat to get my ass over the railing anyway.
I don’t want to kill myself, but that isn’t stopping me from feeling so hopelessly lost that I don’t consider that it certainly wouldn’t be the end of the world for anyone.
I’ve never been great at thinking positive and trying to be grateful for what I do have. I’m not stupid. I know I have it better than many; but until someone has lived in this body and mind, it’s easy for them to say the usual spiel:
“Things will get better.”
“Keep your chin up.”
“It could be worse.”
“Be positive. You can do this.”
Yadda. Yadda.
Again, while this is 100% my fault for my life being this shit hole, that doesn’t mean that I want to or feel I deserve all of this being piled on me. I could cry “it’s not fair” but I’m past that and it doesn’t matter.
Fact is – I could not possibly hate myself anymore than I do right now.
I am a complete and utter failure – at everything. And there is next to nothing in my life right now that makes me the slightest bit happy. Nothing.
I told my mom recently that I feel completely worthless. That I have no value. Her response was “that’s not true” or something to that effect, and that’s it. She dismissed my real feelings of lacking self-worth as an exaggeration. And as I said before…I feel like I really don’t have any real friends anymore. So I have been faking it all. To everyone. Because there is little to no point in trying to get people to believe, understand or even sympathize or care what is happening to me.
I don’t like to go out anymore. Besides the heat, just the effort it takes me to walk to the car, then drive…and then just feel like I shouldn’t be out. Now with how I look and feel – about myself – and about life in general.
I hate my life. And I’m tired of it.
All of it.
So yeah…